This website is dedicated to the memory of our beloved daughter Ela who was born with severe heart condition as a result of CHARGE syndrome - a rare genetic disorder that impacts around one in 10,000 babies born worldwide.

'Love From Ela' is our mission to raise awareness of rare disases and a platform for various charitable and fundraising activities  in memory of our child Ela.

Please make sure to check our Facebook site for the latest news and activities. Thank you for your support!

Kristina & Viktor

Parents of Ela